Sunday, February 10, 2019

Dear Autism Parent Groups




Dear Autism Parent Group,

You have stopped me feeling completely isolated. You were the first people to make me feel like the things we are going to face are okay. Would be okay. Will be okay. You saved me from asking the questions I wasn't ready to ask, didn't want to need to ask, because I could scroll in near anonymity, and find the answers. Not in yet another book, but in posts from a community of people who knowingly or not, may have saved my sanity in those earliest days.

Before I was ready to talk about the bad days. Before I heartily understood, not just logically, that the bad days were just that, bad days. Before I had the courage to believe people would understand I meant that my child was having a bad day, not that I had a bad child, you were there. Sharing. Comforting. Reaching out.

When your child had a bad day, you shared. I wanted nothing more than to hold your hand, reach out, hug you, comfort you. I also felt just a little better. Seeing that other moms, other families had the hard days too. Especially in the beginning, before I was quite ready to speak about it.

When your child hit a milestone, smiled, talked, got a job, wore shoes, potty trained, I cheered, often aloud. Your triumphs and celebrations were palpable and infectious. They gave me hope. They showed me that all this work could be worth it. Would be worth it. Is worth it. I also, though I never dared say it until know, felt the tiniest twinges of envy. When will my child get there? Will my child ever get there? Are these all “high functioning” children? This too, proved to be amazingly helpful to me. The bittersweet feelings evoked in each celebratory post gave words to unspoken fears. Helped me to sort out what to prioritize for my child. Helped me set clearer goals.

Now I speak a lot about this. 4 years after our official diagnosis. Now when I feel like I am over sharing, I remember what your sharing did for me, for us and I share again with the hope that our story may help someone the way yours have all helped me.

Thank you. Keep doing what you do.

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